tag:blogger.com,1999:blog-7552492154103785651.post3350452366019812094..comments2023-10-09T02:57:10.490-07:00Comments on Pink &Plaid Warrior: Maybe once in awhile is okayTonya Graham Jamoishttp://www.blogger.com/profile/00861314802113910657noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-7552492154103785651.post-58265742026904850172011-08-19T18:01:12.492-07:002011-08-19T18:01:12.492-07:00Hey... I'm new to your blog (paula@peaceantig...Hey... I'm new to your blog (paula@peaceantigo.org). I've had a lymphedema flare up that's lasted all summer (on and off). I'm a BC survivor,45 years old, 2 years out of treatment, bilateral mastectomy, chemotherapy, radiation (which brought on the lymphedema). The reason I'm posting is to comment on garment choices. I have a tribute and love it - much better than bandaging at night, especially with hot flashes. I also just bought a juxta-fit armsleeve, which is what you pictured in your blog. I am reserving judgement for now, because I ordered it before I got out of control and now it doesn't fit properly . I also just ordered a caresia sleeve from solarus, it goes under bandaging instead of the foam. It works really well, but it is super-puffy. I thought the bandages made me look like the michilin man... I keep hoping the garment will "save me" from the evil that is lymphedema without putting in the work ( self massage and vigilance). So far... Some work great, some work OK and some didn't work for me. Can I ask what kind of arm sleeve & gauntlet you are using? Know anyone who used lymphedivas? I am plauged by hot flashes due to medication issues, and the website says they are breatheable. Hope you enjoy the rest of your summer!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7552492154103785651.post-12919969670536430042011-04-15T18:57:58.922-07:002011-04-15T18:57:58.922-07:00Once in a while I just use my regular day time sle...Once in a while I just use my regular day time sleeve b/c the hot flashes with the bandaging or compression garment are just too much to deal with. However, there are other garments besides bandaging and the garment you depict in the photo on your post and my therapist made me a great one that has small ribbing that helps guide the fluid in the right direction and it's a ribbed foam sleeve over which you put on a standard compression sleeve of a bigger size and lower compression level to provide the right sizing/compression against the ribbed foam sleeve and it works better than all the high priced garments out there. I bought a Solaris Tribute sleeve thinking that would be even better and I was way wrong so if you are interested in talking to my therapist and trying out one of her custom sleeves I bet she'd be happy to send you one to try it out - if you want to get together and have me show it to you I'd be happy to do that too - we're taking Cooper down to Disney the Saturday before Easter and I could meet up with you while we're in the area if you'd like and show you both the one my therapist made and the Solaris Tribute one I bought. Email me or FB me to let me know if you're interested :). I don't do the bandaging anymore because the ribbed foam sleeve actually does a better job for me -- when I'm in intense flare-up therapy I use the ribbed foam plus bandaging over top of it for optimal results. ;) xoxoJuliehttps://www.blogger.com/profile/00381436173520467146noreply@blogger.com